This came up in my newsfeed a while back. I read all 312 comments. There were some common themes.
To grandmother – “See mom, this is why I want to take pictures of you”
To spouse – “Honey, please take more photos of me and the kids”
and most poignantly:
“I need to work on this.”
I do need to work on this. And I think I’ve made the first steps. This blog post is, by far, the most personal I’ve ever written. I’ve never shared these photos. Nobody has ever seen the selfie, not even my husband. Up until 2 weeks ago, we didn’t have a single photo of my husband and I with our baby. He will be 8 months old on the 13th of this month.
When my husband proposed, I immediately started planning our wedding. I had worked in the industry and knew the vendors I wanted to use. We had a budget and when we were going over everything, the idea of a photographer was mentioned. I hadn’t planned on having one. This hurt my husband’s feelings so badly. So much so in fact, that he said “why have a wedding?” Seeing how strongly he felt, I actually saw a therapist to help get over the extreme anxiety of having my photo taken.
It did help. We hired a photographer. A friend and colleague of my mothers. Oh yeah, did I mention my mother is a photographer? When I got the photos, I cried. Not because of how beautiful they were – but how terrible I thought I looked. I didn’t post them to social media and didn’t share them with anyone.
I have purposefully and conveniently led a life a living in the moment. Truly only because of how self-conscious I am. I would never suggest taking a photo of a friend or an event, an occasion. Anything. Because that would have inevitably led to someone saying “You get it in it too, Darci” . And then where would I be? Uncomfortable, half-heartedly smiling and looking awkward. And dreading the inevitable moment when, after the picture was taken everyone would go and check to see how it came out. I never needed to look. I always knew the answer.
And now, on top of struggling with my own self-conscious; I’m having a hard time remembering to take photos. Even with a camera at my literal fingertips, I forget to take photos. Don’t get me wrong, I have hundreds of my son. But those special moments, whether be a first milestone, or a photo with a family member. Something out of the ordinary that would be truly special – I drop the ball. Can consciously, consistently not doing something become a habit? Has a lifetime of purposefully not taking photos become a habit? I worry that may be the case.
I promise you, this is not me having a pity party, or looking for compliments. I don’t know what to call it or define it as. I really, truly don’t. But the intensity of the feeling demands to be acknowledged. As I said at the beginning: Moving past these feelings is something that I am going to make a conscious effort at. I can’t put into words how hard this blog post has been to write. It has been in my drafts since August. And today, I will finish it. This is the first step. And as I look at the photo below, I can feel my blood pressure rising. The anxiety creeping in. I hate this last photo of me, but love it of my husband and baby. This is the only photo of the 3 of us. We had our baby baptized a couple of weeks ago.
I need to know: Is this common? Do others feel this way? I can only assume by the number of comments on the Facebook post above it is. Give me your feedback. Tell me your experience. Fill me in on the secret of how to overcome it. Please, I’m all ears, err eyes.
I have been working on this post for weeks. Today, I decided to start over. My post was long, and unnecessarily so. It didn’t accomplish what I had wanted it to. It’s tone and the overall message was lost with every paragraph. So here we are. At the beginning.
One year ago, my brother was in an accident. It has been a long three hundred and sixty-five days. I don’t want or need to rehash every sad, upsetting detail. But, I do want to share with you all some of the more poignant moments and some observations that have stuck with me over the last year.
I remember when I got the call from JJ’s foreman, Ian. But more so, I remember the phone call I got from dad shortly after. I asked Ian if JJ was alive. When he answered “yes”, there was no denying the uncertainty voice. I knew what he was saying without saying it. I knew what the tone of that “yes” meant. JJ WAS alive when I left him, but I don’t know if he still is. My dad asked me the same question just minutes after. I wanted to be strong and say sternly, confidently “Yes!” but the words had, unintentionally, come out the exact same way Ian had said it. Unconvincingly.
After I arrived at the hospital, I talked with the nurses and then found the ICU waiting room. I opened the door and was immediately taken aback. The people in the room were talking loudly, laughing, eating. All these things, I couldn’t fathom happening in a place like that. This was supposed to be a place of tragedy, a place for reflection, prayer, and quiet whispered voices. I hated the waiting room with every ounce of my being. I couldn’t stay in there. I honestly, truly couldn’t. Luckily, there was a private waiting room we were told we could use. And by god we did. It was supposed to be for doctors to have consultations with the family of patients. I thought about the tough questions asked and some even tougher answers given in that room. I prayed that that wouldn’t be us. We stayed in that room for three days. And just when we had gotten a little less sad, enough to where we could tolerate talking, and smiling we gave up the room to someone who needed it more. It didn’t last long, we were back in there by day 5. The day JJ’s artery gave out.
That first night, we had been told, that it was going to be a long one. The first time we got to talk to a doctor was around 8 or 9 that night. JJ had been in surgery since one o’clock. Dr. Brown told us that he was the orthopedic surgeon that had been working on JJ. He was impressed with the double femur break JJ had suffered. He said that if you had to have a broken femur (or 2) this is the way to do it. It was a clean break. Flat across. He told us that the bones would be able to fuse with little to no problem, he believed. He said that if all this injury was, was a couple of broken femurs, JJ would be out of here in a few days. But that, as we would come to know, wasn’t the case.
A few hour later we got to talk to the second surgeon. He told us what he had seen and maybe more importantly, what he hadn’t. JJ had lost a lot of tissue, muscle, nerves, and lots of blood. He went through 107 units that day. But most distressing were his arteries. They were completely shredded. I asked the doctor if there was anything I could do. If there was anything that he could take from me to give to J. I told him that he could have whatever he wanted. The doctor smirked and shook his head a little. I could tell he had thought of it. I have no doubt. Maybe not my arteries specifically, but someones. His face said it all. That very thought had come to him. I didn’t delve any deeper. But my father and I both let him know in no uncertain terms that whatever JJ needed, we were happy to give.
At 2 am we were told that they were wrapping up the surgery and they’d be bringing JJ up soon. From the room we were in we could see JJ’s. We stood on chairs, we craned our necks. Did whatever we had to do so we could catch a glimpse of him. And at 3:30, they told us we could go in to see him. He didn’t look like himself. He was so swollen. But I have never been so happy to see someone in my entire life. We asked the prognosis. Torn between the desire to know and the dread that may come with the answer. JJ was, without a doubt, still in critical condition. When the doctor talked about the prognosis, he wasn’t referring to if he would lose a leg or both, it was if JJ would survive. I will never forget that moment.
After a few days JJ had started to come to. Never for long, only a few minutes and then he’d be back to sleep. But when he was awake, he wanted to communicate. It was a tall order with the breathing tube in. Someone got him a small dry erase board. He would try and write something, sometimes falling asleep in the middle of writing, and we would be left with the task of deciphering it. We may as well have been decoding ancient hieroglyphics. And when we couldn’t figure it out, we would start guessing like we were playing a game of charades. Is that an I? No? Ok, is it an L? No? Shit, is it a J? Nope. Then after a minute or two, when all of the energy he had, had drained out of him, he would let his hands drop from equal parts exhaustion and frustration and his eyes would fill with tears and he would shake his head as if to say “I give up”. That was, without a doubt, one of the hardest parts for me. There he was helpless, relying on us to help him, and I couldn’t. I was not a good guesser.
One of the first things that we were able to read was the word “boots”. Mom said, “your boots are right here, J. On the shelf”. She showed them to him. The sense of confusion on his face was unmistakable. My mom and I looked at each other. She knew right away why he was confused. Call it mothers intuition. She said “J, your boots are fine. Your feet didn’t go into the chipper.” His eyebrows became unfurrowed, almost like at that very second, everything came back to him. In fact, one night after the boots incident, mom asked him if he remembered the accident. He nodded as best as he could, and then wrote: “They didn’t believe me.” Later he would explain what he had meant. When his co-worker had been on the phone with 911, JJ told him to tell the dispatcher to get life flight started. He knew that they carried blood on the helicopter and that he was going to need it. But what he either didn’t know or didn’t think about at the time, is that patients can’t request life flight, it has to come from the paramedic.
The hardest day was undoubtedly the day JJ’s right leg artery gave out. It was the first Monday after the accident. The nurses would come in every few hours and pull out this black box that had a stethoscope in the shape of a pen connected it to it. They would put it on the top of JJ’s feet, one by one, and move it around until they heard a swishy sound. That sound was his pulse. That day, they had checked it before he went down to surgery. A process we had already come to know well. And when he would come back. One nurse tried, then another. No swishy sound. They called for the doctor. The room was silent.
The doctor confirmed what we all had suspected. At the very beginning, we had been told that the repair to his arteries was a kind of one and done deal. They weren’t sure if the gore-tex that had put in would hold. Each leg had a 50/50 shot they told us. But it didn’t matter. We wanted a second opinion. We asked that his file be sent to mass Gen to see what they said. JJ had woken up, and I think it was dad who explained the situation to him. He took it well. You could tell he understood and agreed.
A couple of hours later a report came back from Boston. There was nothing that could be done. The right leg would have to be amputated. We cried. A lot. I went to the chapel for a while. Eventually, we all reconvened in JJ’s room. J woke up and motioned for his dry erase board. He wrote, what I made out to be “ambulance or helicopter.” He wanted to know how he was getting to Boston. I read it aloud so he could confirm my guess. He did. This was, for me, the hardest moment of JJ’s hospital stay. I looked at him and said “J, you’re not going to Mass Gen. I’m so sorry. They said that there was nothing they could do.” He stared at the ceiling for a minute, cried only a couple of tears, and fell back asleep.
Not long after, the doctor came back in to explain the procedure for the amputation. We were all listening intently when I looked over and noticed JJ had woken up and was listening too. The doctor started over from the beginning to make sure J heard everything he had said. Nurses came in to start the pre-op prep like they had done earlier. They gave J and an extra dose of whatever powerful concoction he was already on. He fell asleep immediately. One of them asked dad to sign a piece of paper allowing them to amputate. And that, I have no doubt, was dad’s toughest moment. He said he didn’t want JJ to hate him for making that decision. For signing that piece of paper. More tears came.
Now, looking back, the days that follow sort of melt together in a way. But certain moments stick out. The bigger ones, certainly more at the beginning and then start to taper. Like when he got his breathing tube out. There was a nurse on duty that J had taken a liking to. He said to her, “Can I ask you a personal question? Why do I get the feeling that you like me?” Listen, I’ve seen my brother interact with women, and I must say, this was, surprisingly, one of his more charismatic moments.
One of the only times I have seen JJ cry was one of his first nights in his regular room. Everyone was concerned about his mental state. Probably because we were all such a mess we assumed he must be too. It was just him and I and I can’t remember the exact wording I used but I asked him what and how he was feeling. He told me that the hardest part was that he would never be a firefighter again. He cried real hard, and so did I. I told him that if there was something he wanted to do, then he would figure out a way to do it. I had. and still have, no doubt of that. I found a video of a firefighter in Ohio who had an amputation almost exactly like JJ’s. He had been outfitted with a special prosthetic that worked perfectly. He wasn’t on light duty, the guy was fighting fires. I watched J watch the video and then we cried some more.
On Sundays, we would have football parties in his room. We’d bring a cooler and whatever JJ wanted to eat. He had lost so much weight. He was already thin and didn’t have much to lose. When he was able to eat, which was about once or twice every other day, he didn’t eat much. He wanted a special soup. We always called it green soup. Our nanny would make it for us. Kruno went and bought every box Hannaford had. That’s what he’s eating is this picture. He was so happy to have that green soup.
Next came his time at Spaulding. They do some truly amazing work there. And JJ was the incredibly lucky to be the recipient of some of that amazing work. He has said several times that he doesn’t believe he’d be this far along if he hadn’t have gone there. It was hard, him being so far away, but it was for the best. We all knew it. I got this photo one day while I was at work.
I was so proud. JJ has made us all very proud throughout this experience. His resolve has been something to be admired. He would be a great role model for someone who’s gone through a similar experience.
He has worked very hard to get to where he is. I got to go with him to a physical therapy appointment a few months ago. To the naked eye, the unknowing person, it may have looked like he wasn’t doing much. Lifting a leg up and down, moving side to side. But to us, to know where he had been such a short time ago. The condition he was in. How hard he worked. It was nothing short of a miracle. We almost lost him…a few times. But here he is.
So many moments and memories stick out. Things that I want to share. But this post has again, turned out to be very long. They will have to be told at a later time. Maybe on his two year anniversary. The weird thing is, and I think I can speak for most of my family. We are now running on a different calendar. To me, and I’d bet to JJ too, tonight at midnight, marks a new year. With I’m sure, more milestones to conquer and mountains to move. He will continue to progress and heal, hopefully sharing his progress along the way. This past year JJ has been the recipient of more prayers and blessings then could ever be counted. And for that, our family is so incredibly grateful.
I’m not one to post about politics, but I’ve had some things on my chest for a while. All of them are coming to a head. And here seems like as good as place as any to voice them.
The countdown to January 20th continues, and there is no infiltration in sight. No one is coming to our rescue, no one to deliver us from this evil. Because, that was our job, the American voters. We failed, his opponents failed, and like Meryl Streep said “we all lose”. I was nervous when Bush Jr was elected, even more so for the second term. And now, I am downright uncomfortable. I watched his press conference with a knot in my stomach. I kid you not, nausea is still coming at me in waves. This may sound dramatic and maybe some day I’ll look back and agree that it is. But today, I am terrified about what is about to happen. I know I know, my New Years post was about being a positive Polly. I’ve fallen off the wagon. I’ll hop back on as soon as I stop dry heaving thinking about our President Elect.
I have been imagining the possible outcomes. And trying to estimate the probabilities of certain catastrophes happening during the next four years.These are the thoughts that have consumed me since election night. I work in the finance industry. When the president-elect makes a derogatory comment about an industry or company, all you can do is sit back and watch. Watch how that stock or sector flails about. While the market is a cycle and goes through ups and downs, the fact that this one idiot and his ignorant opinions, can wreak havoc in so many ways is unsettling to say the least.
Working in the finance industry, I find myself surrounded by men. Not figuratively, but literally. My desk is smack dab in the center of the four men I work for. Throughout the election is was quite clear that some were supporters of the now president-elect. I can’t count how many times I had to get up and walk away from conversations when it would deviate from the topic at hand to pro-trump bullshit. Or when they would congregate at MY desk and chit-chat about their choice for president and how great everything was going to be once he was elected. I may not be the most open-minded person this side of the Mississippi, but….how? How is this what people think? What they believe? This entire election and everything that has come out of it has been just….unfathomable.
So, as the title of this post said. These are a few of my biglyest fears:
Advancements in Equality (all types) will be set back, potentially decades. That’s worst case scenario. Best case – is just comes to a screeching halt. We can’t reasonably expect the man who said that a judge couldn’t make a fair ruling because “He’s a Mexican” to truly grasp or believe in the idea of equality. Or when doing an interview for New York Magazine and referring to the treatment of women said “You have to treat ’em like shit”. I mean…C’mon.
The possibility that the last 8 years will be undone. When you think about all of the things President Obama and his administration worked so hard for, and that some could potentially be for nothing in a mere 9 days. My god, I feel defeated. And I don’t really have any skin in the game!
Immigration. My husband is from Macedonia and his family is still there. When we learned that Trump was running for president my husbands first reaction was “I need to become a citizen”. And he was absolutely right. But now, questions arise. Will his mother and father be allowed to visit? What type of restrictions will be placed, if any?
Terrorist attacks, specifically on U.S. soil. Donald Trump is a joke. The entire world and it’s leaders know it. Especially the leaders who aren’t our friends. I think we have opened ourselves up to be an even bigger target than we already were. I didn’t think that was actually possible. But apparently, I was mistaken.
My biggest fear of all is for my nephew. Who, by the way is an avid Trump supporter. Bumper stickers and everything. He is in the military. The president elect’s temperament doesn’t seem to shake him though. But it shakes me to my core. The thought of him being at the mercy of an overly sensitive, trigger happy, spiteful awful excuse for a human is gut wrenching. I worry everyday about the probability of him being shipped overseas. I have nightmares about it. I worry that someday I will get a call from my sister, and it will be her telling me that my Joshy has been called for deployment. Please don’t get me wrong. Serving in the military is one of the most selfless things a person can do. I admire and respect every single service member. It’s the thought of someone, who dodged several drafts, playing fast and loose with my loved ones life that upsets me.
While President Obama has repeatedly asked that we, as a nation maintain an open mind. Be optimistic, welcome the new president just as President Bush did for him. I’ve tried and I can’t. Not honestly anyway. I can put on a fake smile for a person or family member who wants to sing Trump’s praises in my presence. But, my poker face isn’t that convincing. They have to see through it, and if they don’t, they are just as oblivious as Trump himself. I think the only sound advice at this moment is something I’ve written about before. More than ever, we’ll need to prepare for the worst and hope for the best.